- Type: Combo Pack
- Designer: Touched By A Butterfly
- Software Category: Girls
- Download Size: 442.9 MB (approximate)
- Digital Papers: 50
- Page Elements: 143
I wanted to design a kit for Katie. ALL proceeds of this kit will go to Katie and her family. Here is a little bit about Katie. You can follow the progress Katie is making by visiting her facebook page.
Katherine has CDKL5 is a rare X-linked genetic disorder that results in early onset, difficult to control seizures, and severe neuro-developmental impairment. Most children affected by CDKL5 suffer from seizures that begin in the first few months of life. Most cannot walk, talk or feed themselves, and many are confined wheelchairs, dependent on others for everything. Many also suffer with scoliosis, visual impairment, sensory issues and various gastrointestinal difficulties. Katie has also been diagnosed with West Syndrome, refractory epilepsy, global developmental delay, hypotonia with multiple joint laxity, mitochondrial dysfunction, strabismus, she wears AFOs and the sweetest disposition you will ever meet! Katherine is the youngest of 4 children. Our lucky Princess has 3 older brothers who absolutely love her!